We’ve made it our mission to help rare neuromuscular communities make sense of patient data for more effective, efficient clinical research.
Strategic, collaborative, non-competitive patient data science
The power of patient data to improve research
Our work in Duchenne by the numbers
18,000+
Clinic visits
7,500+
Patient years of follow-up
2,500+
Boys and young men with DMD
100+
Scientific meetings and workshops
70
Abstracts and posters
47
Collaborating institutions and orgs
15
Peer-reviewed publications
1
Shared, urgent goal
Accelerate research for 300,000 people worldwide